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It took a pandemic: Perspectives on impact, stress, and telehealth from caregivers of people with autism

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dc.contributor.authorWhite, Susan W.
dc.contributor.authorStoppelbein, Laura
dc.contributor.authorScott, Hunter
dc.contributor.authorSpain, Debbie
dc.contributor.otherUniversity of Alabama Tuscaloosa
dc.contributor.otherUniversity of London
dc.contributor.otherKing's College London
dc.date.accessioned2023-09-28T21:09:42Z
dc.date.available2023-09-28T21:09:42Z
dc.date.issued2021
dc.description.abstractShelter in place mandates due to the COVID-19 pandemic left caregivers to determine how to best meet the therapeutic requirements of their children with autism spectrum disorder (ASD). Understanding the challenges faced by families, and their experiences using telehealth for the first time, may help make services sustainable in future public health emergencies. A sample of 70 caregivers of people with ASD from across the US completed an anonymous online survey. Results indicate that impaired emotion regulation was a primary contributor of parent-reported stress for persons with ASD during the pandemic, while loss of established structure and routine contributed to parental stress. Nearly half the sample reported using telehealth for the first time. Many caregivers were appreciative that telehealth permitted continuation of services, but expressed concerns about limited effectiveness due in part to their children?s social communication problems.en_US
dc.format.mediumelectronic
dc.format.mimetypeapplication/pdf
dc.identifier.citationWhite, S. W., Stoppelbein, L., Scott, H., & Spain, D. (2021). It took a pandemic: Perspectives on impact, stress, and telehealth from caregivers of people with autism. In Research in Developmental Disabilities (Vol. 113, p. 103938). Elsevier BV. https://doi.org/10.1016/j.ridd.2021.103938
dc.identifier.doi10.1016/j.ridd.2021.103938
dc.identifier.orcidhttps://orcid.org/0000-0001-8116-5437
dc.identifier.urihttps://ir.ua.edu/handle/123456789/12027
dc.languageEnglish
dc.language.isoen_US
dc.publisherPergamon
dc.subjectAutism
dc.subjectCOVID-19
dc.subjectPandemic
dc.subjectStress
dc.subjectTelehealth
dc.subjectCHILDREN
dc.subjectPARENTS
dc.subjectSYMPTOMS
dc.subjectBEHAVIOR
dc.subjectEducation, Special
dc.subjectRehabilitation
dc.titleIt took a pandemic: Perspectives on impact, stress, and telehealth from caregivers of people with autismen_US
dc.typeArticle
dc.typetext

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